Links to Some Other ALS Web Sites
ALS Association: www.alsa.org/
(You may register to view the "Living With ALS" manuals online at http://www.alsa.org/resources/manuals.cfm?CFID=131442&CFTOKEN=59110574.)
ALS and Associated Web Sites: www.geocities.com/sweekes99/ALStitle.html
(This has many useful links, e.g. Support groups, Chat rooms, Caregiver Web sites, Medical information, and Assistive devices)
The ALS Association
Jim "Catfish" Hunter Chapter
120-101 Penmarc Drive
Raleigh, NC 27603
Toll Free 1-877-LOU-GEHRIG or 919-755-9001 (fax: 919-755-0910)
List of ALS Support Groups in North Carolina
The Jim "Catfish" Hunter ALS Foundation
Post Office Box 47
Hertford, North Carolina 27944
Tommy Harrell, President: 252-426-5145
HealthNewsFlash:
"Amyotrophic Lateral Sclerosis Fact Book"
"An innovative service for people who suffer or whose spouse, child or parent
suffers from a chronic illness or disease. It allows them to create custom searches to scan the news, medical journals, university publications and more -
automatically, every day!"--Web site description. www.healthnewsflash.com/conditions/amyotrophic_lateral_sclerosis.htm
KwMap: A Keyword Map for the Whole Internet. Extensive links to Web sites
related to ALS.
Living with ALS Health Group (Yahoo.com). (" An avenue for persons living
with ALS and their caregivers to communicate with the ALS community immediately, to share information, ideas, support and fellowship. " People who wish to post messages are asked to join the group.)
Muscular Dystrophy Association, ALS Division. "MDA’s ALS Division leads the
world in research and services to defeat ALS." Links to ALS Facts, MDA/ALS
Centers, ALS Newsletter, Living with ALS, Research, Chat, and Videos.
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
NINDS Amyotrophic Lateral Sclerosis Information Page www.ninds.nih.gov/health_and_medical/disorders/amyotrophiclateralsclerosis
_doc.htm
NC Health Info:
Access to web sites of local health services, providers and programs serving residents of North Carolina. Through its connection with MEDLINEplus, a
service of the National Library of Medicine and the National Institutes of Health, users of the site can get information about conditions, diseases and wellness,
and find web sites of local health services, programs and providers throughout North Carolina.
NATIONAL REGISTRY OF VETERANS WITH AMYOTROPHIC LATERAL SCLEROSIS.
Eligible veterans, or family and friends of eligible veterans, are asked to call VA study coordinators, toll-free, at:
1-877-DIAL-ALS (1-877-342-5257), or send e-mail to ALS@med.va.gov or write to:
ALS Registry (152), VAMC, 508 Fulton Street, Durham, NC 27705.
Additional information about the registry can be found on the following website:
http://hsrd.durham.med.va.gov/alsregistry.asp
Carolinas-ALS Chat Room. Message board, links to other useful sites, and calendar of events. Sign up at carolinas-als-subscribe@yahoogroups.com.
Women with ALS Chat Room. An online support group for women living
with ALS.
ALS in the local news:
Daily Reflector newspaper, Greenville, N.C.:
Daily Reflector article about 2007 Walk.
Shop to Stop ALS. Every time you shop online at Amazon.com, Target, Office Depot,
and Marshall Field's you can help fight ALS. Each time you use one of the special links
at the Web site below to do your online shopping, Ride for Life will receive a small commission
for each purchase you make. http://www.rideforlife.com/shop.php
