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The Jim "Catfish" Hunter Chapter of the ALS Association
120-101 Penmarc Drive
Raleigh, NC 27603
Toll Free 1-877-LOU-GEHRIG or 919-755-9001 (fax: 919-755-0910)
You may request copies of the newsletter, "The Catfish Connection."  Information about the Chapter's grant programs, fundraising events, and more.
E-mail: <jerry@catfishchapter.org>
<http://www.catfishchapter.org/

ALS Association.  “The only not-for-profit voluntary health agency dedicated solely to the fight against ALS.”
(You may register to view the "Living With ALS" manuals online at http://www.alsa.org/resources/manuals.cfm?CFID=131442&CFTOKEN=59110574.)

Muscular Dystrophy Association, ALS Division.
Links to ALS Facts, MDA/ALS Centers, ALS Newsletter, Living with ALS, Research, Chat, and Videos.

The Jim "Catfish" Hunter ALS Foundation
Tommy Harrell, President: 252-426-5145
Post Office Box 47
Hertford, North Carolina 27944

ALS and Associated Web Sites
(This has many useful links, e.g. Support groups, Chat rooms, Caregiver Web sites, Medical information, and Assistive devices)

Living with ALS Health Group.  (" An avenue for persons living with ALS and their caregivers to communicate with the ALS community immediately, to share information, ideas, support and fellowship. "  People who wish to post messages are asked to join the group, on Yahoo.com.)

Women With ALS.   Online support group established at the Duke University Medical Center for women with ALS.

National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
NINDS Amyotrophic Lateral Sclerosis Information Page

NC Health Info  
Access to web sites of local health services, providers and programs serving residents of North Carolina. Through its connection with MEDLINEplus, a service of the National Library of Medicine  and the National Institutes of Health, users of the site can get information about conditions, diseases and wellness, and find web sites of local health services, programs and providers throughout North Carolina.

Health News Flash:  "Lou Gehrigs Disease (ALS) Information Book"   
"An innovative service for people who suffer or whose spouse, child or parent suffers from a chronic illness or disease. It allows them to create custom searches to scan the news, medical journals, university publications and more - automatically, every day!"--Web site description.

NATIONAL REGISTRY OF VETERANS WITH AMYOTROPHIC LATERAL SCLEROSIS
Eligible veterans, or family and friends of eligible veterans, are asked to call VA study coordinators, toll-free, at:
1-877-DIAL-ALS (1-877-342-5257), or send e-mail to <ALS@med.va.gov> or write to:
ALS Registry (152), VAMC, 508 Fulton Street, Durham, NC 27705.

Additional information about the registry can be found on the Registry’s website, although the program stopped enrollment of new patients in September 2007:
< http://www.durham.hsrd.research.va.gov/alsregistry.asp>

KwMap:  A Keyword Map for the Whole Internet.  Extensive links to Web sites related to ALS.

The men of St. Timothy's Episcopal Church, Greenville, have collected their best recipes and published a cookbook, "Cooking Rites and Rituals:  A Guy's Guide to Good Eats."  It is dedicated to the memory of Rick Poucher, a former member of St. Timothy's and the Down East ALS Support Group.  A portion of the proceeds will be donated to the Catfish Chapter of the ALS Association.  Copies of the cookbook are available for purchase at $12.00 each from the church:  252-355-2125.  (Note:  inclusion of this notice does not necessarily imply endorsement by the Down East ALS Support Group, but . . . .)

Shop to Stop ALS.  Every time you shop online at Amazon.com, Target, Office Depot, and Marshall Field's you can help fight ALS.  Each time you use one of the special links at the Web site below to do your online shopping, Ride for Life will receive a small commission for each purchase you make. <http://www.rideforlife.com/shop.php> (Note:  inclusion of this notice does not necessarily imply endorsement by the Down East ALS Support Group.)


3/18/08






 
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