The Jim "Catfish" Hunter Chapter of the ALS Association 120-101 Penmarc Drive Raleigh, NC 27603 Toll Free 1-877-LOU-GEHRIG or 919-755-9001 (fax: 919-755-0910); from the Greenville calling area: 329-9140 (no charge; it's a local call). You may request copies of the newsletter, "The Catfish Connection." Information about the Chapter's grant programs, fundraising events, and more. E-mail: <jerry@catfishchapter.org> <http://www.catfishchapter.org/>
ALS and Associated Web Sites. (This has many useful links, e.g. Support groups, Chat rooms, Caregiver Web sites, Medical information, and Assistive devices)
Living with ALS Health Group. (" An avenue for persons living with ALS and their caregivers to communicate with the ALS community immediately, to share information, ideas, support and fellowship. " People who wish to post messages are asked to join the group, on Yahoo.com.)
Women With ALS. Online support group established at the Duke University Medical Center for women with ALS.
NC Health Info Access to web sites of local health services, providers and programs serving residents of North Carolina. Through its connection with MEDLINEplus, a service of the National Library of Medicine and the National Institutes of Health, users of the site can get information about conditions, diseases and wellness, and find web sites of local health services, programs and providers throughout North Carolina.
Health News Flash: "Lou Gehrig's Disease (ALS) Information Book" "An innovative service for people who suffer or whose spouse, child or parent suffers from a chronic illness or disease. It allows them to create custom searches to scan the news, medical journals, university publications and more - automatically, every day!"--Web site description.
NATIONAL REGISTRY OF VETERANS WITH AMYOTROPHIC LATERAL SCLEROSIS. Eligible veterans, or family and friends of eligible veterans, are asked to call VA study coordinators, toll-free, at: 1-877-DIAL-ALS (1-877-342-5257), or send e-mail to <ALS@med.va.gov> or write to: ALS Registry (152), VAMC, 508 Fulton Street, Durham, NC 27705.